Posted On: 11/09/18
Join 80,000 people on Friday 12 October for The Big Pink party and help change the lives of those affected by breast cancer. Sign up for your free kit today: You can chose to support this fantastic charity on a regular basis with a Payroll Giving donation via your Employers scheme.
Posted On: 15/08/18
Everyone loves tea, cake and a good natter, right? Well, did you know you can do this and ‘Bake a Difference’ to the lives of more than 70,000 people at the same timewith Muscular Dystrophy UK? We’re calling on all wannabe Mary Berrys to get their bake on between 8 and 14 October to raise vital funds and awareness of muscle-wasting conditions. Meet Chef Sammy and the de Laszlo’s and sign up today to Bake a Difference to make a difference !
Posted On: 10/07/18
Muscular Dystrophy UK are disappointed to hear that Summit Therapeutics has stopped the development of its Duchenne drug, ezutromid. After reviewing results from the PhaseOUT DMD trial, Summit has reported that whilst ezutromid was safe, it unfortunately did not provide a benefit to participants. While this is understandably disappointing to families, we have to remember that not all trials will be successful and others are in the pipeline. The learnings from a negative trial can also be...
Posted On: 21/05/18
What's your guilty pleasure? Could you join the Kiss Goodbye to MS campaign and give up your alcohol or chocolate for a good cause? MS Society UK aim to stop MS in it's tracks and are asking if you can give it up for 1 month to support MS research.
To find out more and read some survival tips click here
To support on an ongoing basis sign up to your employer's Payroll Giving scheme and donate to Make a Difference
Posted On: 02/05/18
The UK Government has announced plans to work with the aviation industry to make air travel easier for disabled people. Ministers are to consider a number of key Trailblazers Up in the Air campaign asks, including space for disabled toilets on aircrafts and priority storage for wheelchairs.
The Government are also considering the ability for wheelchair users to take their wheelchairs onboard the plane and travel in it.
Trailblazers went to the Flying Disabled Symposium last year,...
Posted On: 28/03/18
Hopefully by now you will have heard of the Scumrun challenge; teams of car enthusiasts will be meeting in Kent on 17th May to embark on a five day mystery tour across Europe. The slight catch is that they will be driving vehicles which they themselves have bought (on a budget) with the hope they’ll survive the ride! Monies raised from the event will be going to Action.
One of the most recent teams to sign up is ‘Carry On Action Medical Research’, led by 75-year-old retiree...
Posted On: 21/02/18
In an increasingly computerised and technological world, it is important for youngsters to connect with the world around them, and be immersed in their environment through play and exploration, come rain or shine.
Having been a primary school teacher for over 10 years, Jenny Everitt, has seen how modern life can take over; more and more children turn up to class with very little experience of the natural world. Their weekend news is often based around computer games or TV programmes, and much...
Posted On: 17/01/18
Weight gain during or after breast cancer treatment can be unexpected and distressing, but it’s not uncommon. We look at why some people put on weight, and give some tips on how to start losing weight after treatment.
There are several reasons why someone might put on weight during or after treatments such as chemotherapy.
Posted On: 29/11/17
Over recent years there has been a change in the nature of risk for street children. They are no longer ignored and seen as worthless. Vulnerable children are now seen as ‘commodities’ that can be exploited by those who would do them harm, and even in some cases by those who need them to access services they cannot access on their own.
Toybox are guided by the UN Convention on the Rights of the Child (UNCRC) in taking a rights based approach to working with street connected...
Posted On: 14/11/17
We’ve discovered more than 3,000 people in England under the age of 65 – including people with MS – are living in care homes for older people.
That means that, across the country, almost one in seven younger adults in residential care could be living in homes that were never designed for them.
We know that older people’s homes can’t always meet all the needs of younger...
Posted On: 24/09/17
Sammy de Laszlo looks like any other 8 year old, happily playing with his favourite cars, or trying to chase his elder brother Thomas in the park. It’s in this situation however, that you notice that Sammy cannot keep up with his brother, this is because Sammy has Duchenne muscular dystrophy.
Sammy’s parents, Oliver and Tricia have been raising money and awareness for over three years to help fund research into treatments that will help not just Sammy, but all children...
Posted On: 30/08/17
After Ann finished treatment for breast cancer, she was struck by a wave of anxiety and grief as the impact of her diagnosis hit. She tells us about how time became distorted, affecting her ability to look ahead, and how mindfulness helped her overcome these feelings.
Two years ago I had finished my treatment for grade 2, stage 3 triple negative breast cancer and was looking forward to a relaxing family holiday on the Kent coast with my...
Posted On: 26/07/17
The Woodland Trust, the UK's leading woodland conservation charity is asking for your support.
On 6 November 2017, the 800th anniversary of the influential 1217 Charter of the Forest, we will launch the Charter for Trees, Woods and People. We believe the people of the UK have a right to the benefits brought by trees and woods. The new charter will recognise, celebrate and protect this right.
The Tree Charter will draw its strength from the hundreds of thousands of people across the...
Posted On: 20/06/17
Stand up for woods, trees and wildlife with the Woodland Trust, the UK’s largest woodland conservation charity. Trees are vital for life but our woods are facing relentless threats.
That’s why we fight. We protect, restore and create woods, plant millions of new trees and campaign to save woodlands in peril.
We’re on a journey to make a real difference to the future of our native woods and trees and we want you to come with us.
Posted On: 21/06/17
As you may know, when someone you love is diagnosed with breast cancer, everything changes. Breast Cancer Care is here to support the person with breast cancer as well as their family and friends.
Thanks to your generosity, Breast Cancer Care helping more people through our team of nurses who are at the end of a phone, through our 24/7 online support, and by helping people affected by breast cancer to connect with others who have had a similar experience.
Thank you so much.
Posted On: 21/06/17
Eight year old Lily has a devastating, life-shortening condition known as beta-propeller protein-associated neurodegeneration or BPAN.
This disease strikes young children, causing them to develop slowly and to miss key developmental milestones. It leads to seizures and muscle problems. Lily takes medicines for dribbling and to control her seizures and she suffers from sleep problems and uses a wheelchair.
With no cure, and no way to stop the progress of this disease, as children grow into...
Posted On: 20/06/17
Thirty-four-year-old Dean Yorke is a DJ from Reading, Berkshire. Diagnosed with a muscle-wasting condition thirty years ago, when he was aged just four, Dean’s Family have been tirelessly fundraising for Muscular Dystrophy UK ever since.
“My parents (James & Monica), are really inspiring, and have raised thousands of pounds for Muscular Dystrophy UK. Over the years, as a family, we’ve organised all sorts of charity events - Irish dances, quiz nights, and three-legged pub crawls just to...
Posted On: 15/06/17
Toybox is a UK charity with a mission to end the injustice of children living and working on the streets. We work with the most marginalised children in some of the most dangerous cities in the world.
The absolute first step of getting children off the streets is to provide them with a legal identity. In Guatemala, one of the most violent countries in the world, an estimated 700,000 children do not have birth certificates and are simply known as “the XXX children”. Without this official...
Posted On: 15/06/17
We’re thrilled to announce that we are co-funding a UK-wide trial to investigate whether the drug simvastatin can slow down secondary progressive MS (an advanced stage of the condition).
If successful, it could be the first licensed treatment for this type of MS, improving thousands of lives in the UK. With your support, the next research breakthrough for MS is within reach.
Thank you again.
Posted On: 15/06/17
Gifts to Childlife are divided between its four partner charities who support children, one of which is Acorns Children’s Hospice.
Acorns is a place where care and support for the family of life-limited children is key to the service they provide in their West Midlands hospices.
Respite care gives a family confidence that their child is as safe at Acorns as they are at home. This peace of mind cannot be underestimated. When parents feel able to leave their child for a short break knowing...
Posted On: 25/05/17
Action for Street Kids works for children who are homeless and abandoned, living on the streets of cities in the UK and overseas and for children forcibly abducted and made to fight in conflicts around the world by armed groups. Read more about Ask projects: http://www.action4streetkids.org.uk/projects/
Posted On: 23/01/17
Posted On: 09/10/16
Can being hit in the breast cause cancer? Do deodorants raise your risk? Is there a link between breast cancer and bras?
If you’ve ever performed a quick Google search about the causes of breast cancer, you may have come across a variety of claims about what increases your risk of the disease. Some of these so-called ‘facts’ are myths or misunderstandings that are not backed by scientific evidence.
This Breast Cancer Awareness Month, Breast Cancer Care dispel 10 of the most common breast...
Posted On: 18/09/16
Fourteen months after she finished her treatment, Sarah Pickles looks back on the day she found out she had triple negative breast cancer.
The door handle started to turn. I knew this was the moment that could change my life forever.
The surgeon appeared with another staff member. He introduced himself and then introduced Sally, a breast care nurse. He started to go through my notes: family history, the results of the mammogram and the biopsy. Then he delivered the devastating news: ‘I’m...
Posted On: 12/09/16
Waiting for scans or any other breast cancer tests and their results can be very difficult. The tests might be to diagnose cancer, monitor how well treatment is working or mammograms used as part of follow-up after treatment.
On the Breast Cancer Care Helpline, Forum and Live Chat services people often use the phrase ‘scanxiety’ to describe this time and the emotions they feel.
Anxiety can cause a range of physical symptoms such as muscle tension, diarrhoea, palpitations and sweating....
Posted On: 02/08/16
There are so many uncertainties for women who have incurable secondary breast cancer, like Claire.
They don’t know how many birthdays, celebrations or anniversaries they have left. They wonder whether they’ll be able to go on another holiday. Whether they’ll see many more of their children or grandchildren’s school plays. When their drugs will stop working.
There are around 36,000 women in the UK living with secondary breast cancer right now. And we know that far too many of them are...
Posted On: 19/07/16
Woodland trust are excited to announce the launch of their new Tree ID app. It's a fantastic identification tool that works throughout the seasons and will help you answer the question: what is that tree?
Posted On: 12/07/16
When you have breast cancer, everything changes. Time becomes measured in appointments. The next scan. The next results. The next challenge. At Breast Cancer Care, we know that everyone’s experience is different. Because of you, we’re able to be there for more women on the day they need us the most.
When you’ve been diagnosed with breast cancer, every bit of your life can change forever. It’s the non-stop hospital visits. It’s the battering to your confidence and self-esteem....
Posted On: 07/07/16
Our woodland, home to more wildlife than any other landscape, is under threat. Woodland losses over many years means the UK has one of the least wooded areas in the whole of Europe. Past clearance of woodland is now compounded by losses to infrastructure and development, and the growing impacts of climate change and pests and disease is taking its toll. The consequences for our wildlife are devastating. Britain’s plant and animal species are declining at an alarming rate and many are at...
Posted On: 28/06/16
There is no cure for MS. Yet. But research is progressing faster than ever before. And your support is helping take us further. So what’s new?...
Zebrafish are making a splash in MS research
Despite being around the size of your little finger and distinctly stripy, zebrafish share a number of important genes with us humans. Because of this, and their ability to reproduce and develop quickly, these tiny creatures are proving very useful to MS researchers.
Zebrafish are translucent, so...
Posted On: 24/06/16
15 million people, the majority of them children, work on garbage dumps around the world every day.
Children as young as just 5 or 6 can spend up to 12 hours scouring through rotting food, broken glass, plastic, needles and sewage. Children compete with dogs and with rats, to earn around 15p per day, just enough not to starve. Children often have headaches and nausea from the fumes on the dump and severe stomach illnesses from eating food with dirty hands or eating rotting putrid food they...
Posted On: 21/06/16
Alfie is a lively boy who loves jokes and playing tricks on people, but for Alfie, who has cerebral palsy, having fun is a daily struggle.
“Alfie suffered devastating brain damage at birth. His muscles and his brain cannot ‘talk’ to each other so he is unable to control the way his body moves”. Samantha, Alfie’s mum.
He also has quadriplegia, which means all his limbs are affected. He can see and hear, but he is profoundly affected in terms of physical movement, and cannot...
Posted On: 21/06/16
Lucy Brady lives in Huntingdon, Cambridgeshire, with her husband, Andrew, and their four-year-old daughter, Ella, who has Charcot-Marie-Tooth disease (CMT).
“By the time Ella was two, she was falling over all the time and her feet were starting to turn over. In February 2015 a blood test confirmed she had CMT. Having ‘cheeky feet’ is how we describe Ella’s condition to her. We tell her that when she was made, CMT said they wanted to be part of her. Ella said, “What if I don’t want...
Posted On: 21/06/16
A gift to Childlife is very special as funds are divided between its four partner charities, one of which is National Deaf Children’s Society. This year marks the 10th anniversary of universal newborn hearing screening being introduced across the UK, following campaigning from the National Deaf Children’s Society.
Prior to this, the infant screening programme, commonly referred to as the ‘distraction’ test, took place at eight months, meaning that many babies went undiagnosed and...
Posted On: 13/06/16
Over half of younger women with breast cancer have no discussion with healthcare professionals about options for preserving fertility. This is despite national guidelines recommending younger women should be offered fertility preservation before starting breast cancer treatment.
According to the findings of a survey by Breast Cancer Care, 53% of younger women diagnosed with breast cancer were not given the chance to discuss the possible impact of their treatment on fertility. Treatments such...
Posted On: 06/06/16
On 27 April, David Allen was on stage, applause ringing out as he collected his ‘Volunteer of the Year’ award at the MS Awards ceremony in London. Selected from many thousands of everyday superheroes, he was honoured for his work as Chair of our Luton, Dunstable and District Branch.
“I had no idea I’d been nominated, I was shocked and surprised,” David told us. “It is such a lovely feeling to be recognised, especially as I’ve been nominated by my peers.”
Three years ago,...
Posted On: 30/05/16
Childlife have been looking for more enjoyable ways for you to support them this summer. How about hosting a Barbecue for a group of friends and asking them to make a donation to them, instead of bringing you wine or flowers? Raise money for charity and enjoy a meal with friends. The new and easy way to raise money for your favourite charity by having friends over for a meal. Find out here >> http://www.dinner4good.com/childlife/